The Intersectionality of Identity, Culture & the Rare Disease Experience — Health Equity Forum 2023

This panel spoke during the 2023 Health Equity Forum in San Diego, California.

In order to build cultures of equity through community engagement, we first need to understand the root of each culture and ways in which a person’s lived experience, beliefs and cultural values impact their interaction with the healthcare system. In this session, panelists discuss their different lived experiences and cultural backgrounds, how their rare journey is unique and what health equity means to them.

Moderator:
Michelle Rivas, MBA, MA
Senior Manager, Communications, Horizon Therapeutics

Panelists:
* Vanessa Hiratsuka, PhD, MPH (Diné/Winnemem Wintu)
Assistant Professor, University of Alaska Anchorage, Center for Human Development

* Daniel Price
Adult Regional Coordinator, TSC Alliance

* Neena Nizar, EdD
Founder & Executive Director, The Jansen’s Foundation