After a screening of the film Holding Moses at Global Genes’ Week in RARE 2024, we welcomed the rare mom featured in the film, Randi Rader, and the film’s director Rivkah Beth Medow to the stage to take questions from Global Genes’ Director of Community Engagement, Daniel DeFabio, and our Health Equity Forum audience. Randi’s son Moses has Phelan-McDermid Syndrome. You can watch the film “Holding Moses” at the New Yorker website link below:
Our Q&A Session can be found below and on our YouTube channel
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