Videos

Xcelerate RARE: Open Science Data Challenge Overview

December 8, 2022

Xcelerate RARE: A Rare Disease Open Science Data Challenge is bringing together researchers and data scientists in a collaborative and competitive environment to use patient-provided data to solve big unknowns in healthcare. The Challenge will launch to researchers in Spring 2023, focused on rare pediatric neurodevelopmental diseases. So between now and Rare Disease Day (February 28th, 2023), patients and families affected by these conditions are encouraged to enter health care information into the data collection program so researchers can start making discoveries!

RARE-X Sr Director of Scientific Programs Karmen Trzupek explains Xcelerate RARE in this video.

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