Hemophilia A

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Synonyms: Congenital F8 deficiency | Congenital FVIII deficiency | Congenital Factor VIII deficiency

A rare genetic hematological disorder characterized by spontaneous or prolonged hemorrhages due to factor VIII deficiency.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version March 2026

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Hemophilia A?

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Advocacy Organizations

Bleeding Disorders Council of California

More than three decades after its founding, BDCC continues to pursue its mission to promote access to care and advance the quality of life for people with bleeding disorders. In collaboration with our founding organizations, BDCC continues to elicit change through advocacy, education, and outreach.

CHES Foundation, Inc

The mission of the CHES Foundation, Inc began with Comprehensive Health Education Services in 2009 to provide nSpiration through Education to families and individuals with chronic conditions such as rare bleeding disorders. We create educational experiences that encompass all aspects of individuals lives from medical treatments, social emotional health and family support to create a community.

Hemophilia Foundation of Northern California

The Hemophilia Foundation of Northern California (HFNC) serves the needs of people impacted by bleeding disorders through enhancing quality of life by providing support, education, outreach, advocacy and research through our affiliated national foundations.

Hemophilia Welfare Foundation (Kenya)

o assist persons with hemophilia and related blood disorders through direct services and aid, and through programs of education and advocacy. To encourage, promote, and support scientific research toward improved treatment, medical care, and cures of hemophilia and related bleeding disorders and their complications. To educate the public regarding bleeding disorders and the problems thereof, and

Hemostasis and Thrombosis Center of Nevada

The Hemostasis & Thrombosis Center of Nevada (HTCNV) is Nevada's only federally designated hemophilia treatment center (HTC). We provide care for benign inherited blood disorders specifically bleeding disorders, thrombotic disorders and sickle cell disease. Our mission is to provide access to compassion evidence based quality care to all patients in Nevada regardless of their ability to pay.

website Location: Local, State, Regional

National Center of Hematology and Blood Transfusion

Treatment of patients with blood diseases,scientific-research works

Location: National

OPFORD Foundation

OPFORD.org (Open Platform for Rare Diseases) was conceived as a digital and online resource centre for orphan diseases with a primary focus of serving patients and caregivers by connecting them to curated resources regarding symptoms, causes, diagnosis and treatment. We have expanded our services to health counselling and guidance for patients and caregivers to prevent possible complications.

V_life savers foundation

Save the life of hemophilia patients and non hemophilia patients and bleeding disorder.

Location: State

accessia health

Accessia Health, a national charitable patient assistance organization, is dedicated to eliminating healthcare barriers for people with rare or chronic health conditions. Comprehensive services include personalized case management, financial assistance, education, and legal aid support. Our flexible funding model goes beyond copays, allowing individuals to pay for other essential medical expenses

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Clinical Trials

For a list of clinical trials in this disease area, please click here.