RARE Patient Advocacy Summit
From: 09/27/2021 To: 09/29/2021
All day event
Virtual Event:
Global Genes Events
Community Events
The Full Hearts Program: Pediatric Rare Disease Patient Mentoring and Support
By Neha Gondra
From: 01/28/2021 To: 10/02/2021
All day event
Voice of the Rare Carrier
By Cristol Barrett O'Loughlin
From: 06/21/2021 To: 07/27/2021
5:00PM - 6:30PM UTC-08:00
GNEM Symposium Speaker Series
By Neuromuscular Disease Foundation
From: 06/25/2021
10:00 am - 11:00 am UTC-08:00
Interview With Evren and Kara Ayik, Authors of ‘Extraordinary! A Book for Children with Rare Diseases’
By Shelley Bowen
From: 06/25/2021
12:00 - 13:00 UTC-04:00
Koolen-de Vries Syndrome Foundation Patient Advocacy Summit
By Ashley Point
From: 07/14/2021 To: 07/16/2021
All day event
