2026 RARE Drug Development Symposium
Rare disease patient advocates are taking the lead in research like never before, driven by the urgent need for new treatments. During this 2.5 day event, attendees will have a mix of main stage sessions, targeted breakouts, group presentations, and hands-on workshopping. Whether you’re initiating research efforts or looking to refine your strategy, this symposium offers practical insights to accelerate progress in research strategies and activities.
Learn MoreUpcoming Global Genes Events
Browse and find upcoming Global Genes in-person
or virtual RARE disease events by date and location hosted around the world.
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Upcoming Community Events
NR2F1 Family & Scientific Conference 2026
April 8, 2026 – April 10, 2026
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DetailsCureDuchenne Futures National Conference
May 21, 2026 – May 24, 2026
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Details2nd Edition of the Public Health World Conference (PHWC 2026)
July 17, 2026 – July 19, 2026
DetailsInternational v-ATPase Awareness Day
July 23, 2026
Details2nd European Congress on Rare Diseases and Orphan Drugs
September 14, 2026 – September 15, 2026
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Details7th Annual SCCAPE Conference
September 17, 2026 – September 20, 2026
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Past Global Genes Events
2024 RARE Drug Development Symposium
The 2024 RARE Drug Development Symposium, hosted by Global Genes in partnership with the Orphan Disease Center of the University of Pennsylvania, focused on innovative ideas from next generation change-makers.. This archived page includes the agenda, recordings of the sessions, key takeaways from each session, and stats from the event itself.
Learn More2023 RARE Advocacy Summit
The 2023 RARE Advocacy Summit convened rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies. Attendees gained insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies they could take home and implement to accelerate change.
Learn More2023 RARE Health Equity Forum
The RARE Health Equity Forum convenes stakeholders in the rare disease space to identify ways to better serve marginalized populations within the rare disease community. In its third year, the event focused on the theme of “Equity In Action” and sessions provided attendees with actionable tools and strategic insights to support underserved and/or underrepresented patients within their community.
Learn More2023 RARE Drug Development Symposium
The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania, equips advocates with the knowledge, skills and connections they need to advance therapy development for their communities. The 2023 event focused on collaboration – the foundation of success in rare disease research.
2022 RARE Patient Advocacy Summit
The Summit forged meaningful connections with others in the rare disease community for future collaboration. Sessions provide attendees with insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies they can take home and implement immediately to accelerate change.
Learn More2022 RARE Health Equity Summit
The RARE Health Equity Forum, hosted in partnership with the Rare Disease Diversity Coalition (RDDC) convenes rare disease stakeholders to identify collaborative efforts to address inequities in the care of patients with rare diseases. This event provided attendees with strategic insights and tools to empower and equip them to address racial, ethnic, gender, socioeconomic, and other disparities.
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