Ways to Participate in the Global Genes Community

Find ways to participate within Global Genes through advocacy, research, programs, and building awareness.

Share Your Story

Although individual diseases are vastly different, our stories and experiences bond us as a rare community. Share your story as a patient, advocate, caregiver or supporter to be featured in our Community Highlights and inspire others.

Share Your Story

RARE Compassion Program

RARE Compassion Program connects healthcare students with individuals and families with rare diseases to help foster meaningful doctor-patient relationships.

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Impact Grants

As an exclusive funding opportunity for rare patient organizations in the Global Genes Global Advocacy Alliance, these grants provide a positive impact on patient communities in need.

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Other Ways to Participate

Entrepreneurial Development

REDI Initiative equips, connects, and enables budding leaders in the rare community to become effective advocates and entrepreneurs

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Support Global Genes through ONEHOPE Wine. Every case of the Reserve Gewurztraminer purchased funds one-on-one genetic counseling support for a rare disease patient.


Global Genes and RARE-X to Merge, Creating Next-Generation Patient Advocacy Engine

What is the RARE-X?

RARE-X grew out of a need identified through Global Genes to improve the collection and sharing of rare disease patient data to shorten the diagnostic odyssey, fuel drug discovery, and drive development of treatments.