Ways to Participate in the Global Genes Community
Find ways to participate within Global Genes through advocacy, research, programs, and building awareness.
Share Your Story
Although individual diseases are vastly different, our stories and experiences bond us as a rare community. Share your story as a patient, advocate, caregiver or supporter to be featured in our Community Highlights and inspire others.Share Your Story
RARE Compassion Program
RARE Compassion Program connects healthcare students with individuals and families with rare diseases to help foster meaningful doctor-patient relationships.Learn More
As an exclusive funding opportunity for rare patient organizations in the Global Genes Global Advocacy Alliance, these grants provide a positive impact on patient communities in need.Learn More
Other Ways to Participate
REDI Initiative equips, connects, and enables budding leaders in the rare community to become effective advocates and entrepreneursLearn More
Support Global Genes through ONEHOPE Wine. Every case of the Reserve Gewurztraminer purchased funds one-on-one genetic counseling support for a rare disease patient.Shop ONEHOPE
Global Genes and RARE-X to Merge, Creating Next-Generation Patient Advocacy Engine
What is the RARE-X?
RARE-X grew out of a need identified through Global Genes to improve the collection and sharing of rare disease patient data to shorten the diagnostic odyssey, fuel drug discovery, and drive development of treatments.