An Open Science Data Challenge to Address Rare Neurodevelopment Diseases
December 15, 2022
RARE-X will kick off Xcelerate RARE: A Rare Disease Open Science Data Challenge this spring. For this inaugural challenge, researchers and data scientists will work in a collaborative and competitive environment to use patient-provided data to solve research questions focused on rare pediatric neurodevelopmental diseases.
We spoke about the open science data challenge with:
- Karmen Trzupek, Senior Director of Scientific Programs for RARE-X,
- Salvatore La Rosa, Chief Scientific Officer of the Children’s Tumor Foundation, and
- Andrew Nguyen, Section Head of Medical Informatics for Genentech.
The three discussed open science challenges, how they work, and what RARE-X hopes to accomplish through this event.
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