An Open Science Data Challenge to Address Rare Neurodevelopment Diseases

RARE-X will kick off Xcelerate RARE: A Rare Disease Open Science Data Challenge this spring. For this inaugural challenge, researchers and data scientists will work in a collaborative and competitive environment to use patient-provided data to solve research questions focused on rare pediatric neurodevelopmental diseases.

We spoke about the open science data challenge with:

• Karmen Trzupek, Senior Director of Scientific Programs for RARE-X,
• Salvatore La Rosa, Chief Scientific Officer of the Children’s Tumor Foundation, and
• Andrew Nguyen, Section Head of Medical Informatics for Genentech.

The three discussed open science challenges, how they work, and what RARE-X hopes to accomplish through this event.