RARECast: Screening for Rare Disease

The Rare Disease Film Festival will debut in Boston, MA on October 2-3, 2017. The festival will feature a range of more than 30 films focused on topics of rare disease. The event will also include talks from filmmakers, patient advocates, and researchers. The organizers not only hope to raise awareness about rare diseases, but also initiate conversations and forge connections. We spoke to one of the organizers of the event, Bo Bigelow, about the film festival. He shared his own search for answers about his daughter’s ultra-rare condition, and why this festival is about more than just films.