Meet-Up Impact Grants

Caregiver/Patient Support: Select this category if your meet-up is focused on convening rare disease caregivers/patients to discuss and address the challenges faced by rare caregivers and patients, foster relationship building amongst caregivers/patients in your community, to offer a fun reprieve for caregivers, patients and families.

Scientific Updates and/or Clinical Research: Select this category if your meet-up is focused on convening researchers/clinicians/advocates to discuss advances in research in specific disease areas or classifications, data collection or clinical trials, patient registries or natural history data. You may also select this category if you are convening patients and caregivers to educate them about your registry or natural history study or to collect biosamples.

Capacity Building: Select this category if your meet-up is focused on building/expanding your organization’s capacities in the form of fundraising, volunteer expansion, community outreach, etc. For example, a meet-up funded in this category could be one that is going to serve as a training session for volunteers or that allows the organization to develop a program or strategic plan for advancing the organization’s missions and goals.