Global-Advocacy-AllianceWe are a global community changing the way the world tackles rare disease. Our partners include nonprofit, government, academic, research, service, and industry organizations that believe collaboration is the key to positive change. Partner with us. Together, we can connect, empower and inspire the rare disease community.  

We are excited to announce that as of March 18, 2022, we have officially launched our Global Advocacy Alliance (The Alliance), formerly known as the RARE Foundation Alliance. To be eligible to join the Global Advocacy Alliance, you must be a support group, U.S. Foundation with 501(c)(3) status or international foundation and be able to provide access to information through a website or active Facebook page, offering rare disease information or support in one or more of the following ways: patient /caregiver support, healthcare provider education, public awareness and advocacy and/or research. The Alliance membership is an annual membership, which ends 365 days from your sign-up date. You will need to renew your membership each year before your membership expires.  For example, if you sign up on March 17, 2022 your membership will be eligible for renewal on March 17, 2023. If you don’t renew, you will lose all The Alliance benefits/membership.

Join Now    Member Events    View Full List of Alliance Members

Become a Global Advocacy Alliance Founding Member!

Join the GAA by May 31, 2022 to become a founding member. As a founding member, you will:

  • Be an official Global Genes partner as we ramp up this new program.
  • Become a founding member for life, as long as your annual membership does not lapse.
  • Receive a GAA Founding Member Badge to use on your organization’s website and for use on our RARE portal.
  • Be recognized as a founding member on our social media. We will announce NEW founding members from each week on our social channels until the deadline! 
  • Receive discounts on this year’s Patient Advocacy Summit.

Global Advocacy Alliance Benefits and Cost Structure

Membership Annual Cost Structure

Your Organization Cost
Support Groups and Organizations without 503c status / Annual Gross Revenue Less Than $9,999 Free
Annual Gross Revenue Less Than $ 10,000- 49,999 $50
Annual Gross Revenue Less Than $ 50,000-149,999 $100
Annual Gross Revenue Less Than $ 150,000- 299,999 $200
Annual Gross Revenue Less Than $ 300,000- 499,999 $250
Annual Gross Revenue Less Than $ 500,000- 999,999 $400
Annual Gross Revenue Less Than $1,000,000-3 million $600
Annual Gross Revenue Greater Than $3 million  $900

Current Foundation Alliance Members: To continue uninterrupted access to all current benefits, including grant eligibility, event discounts, and access to Global Genes Partners, Initiatives, or Tools to assist your organization with your goals and needs, you will need to join the Global Advocacy Alliance. Foundation Alliance members will still have access to the Facebook Group. All other previous benefits will only be available to members of the Global Advocacy Alliance.

View the full list of RARE Foundation Alliance members.

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Questions about the Global Advocacy Alliance Membership? Email our team at .