RARE Daily

Horizon Therapeutics Launches #RAREis Global Advocate Grant Program

May 3, 2022

Horizon Therapeutics said it launched the #RAREis Global Advocate Grant, a new program designed to support the rare disease community by providing financial assistance to U.S. and global patient advocacy groups working to advance, educate, and address the needs of the community.

The company said the #RAREis Global Advocate Grant will help many smaller rare non-profit organizations better educate and engage their communities.

In 2022, up to 30 patient advocacy groups will be eligible to receive a one-time $5,000 grant. In order to qualify, groups will be required to submit a request. Horizon will manage the application process, selection, and distribution of the grants. Applications will be evaluated based on the needs outlined by each patient advocacy organization that applies, as well as the potential impact of the grant.

Applications are open from Monday, May 2 to Friday, June 3, 2022. Recipients will be announced in June and grants will be provided in July 2022.

“Horizon’s approach is to listen, learn, and understand the challenges of the rare disease community, ultimately working to help patients get better educated, engage with each other, and seek the best possible care,” said Matt Flesch, vice president, communications and patient advocacy for Horizon.

In February of 2017, Horizon launched the #RAREis program aimed at elevating the voices, faces, and experiences of people living with rare diseases, as well as highlight programs and resources for the rare disease community.

Author: Rare Daily Staff

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