2026 RARE Drug Development Symposium

SAVE THE DATE

September 9 – 11, 2026, Boston, MA

Rare disease patient advocates are taking the lead in research like never before, driven by the urgent need for new treatments. The RARE Drug Development Symposium hosted by Global Genes in partnership with Boston Children’s Hospital and the Termeer Institute is designed to equip advocates with the knowledge, skills, and connections to navigate early-stage research with confidence. During this 2.5 day event, attendees will have a mix of main stage sessions, targeted breakouts, group presentations, and hands-on workshopping. Whether you’re initiating research efforts or looking to refine your strategy, this symposium offers practical insights to accelerate progress in research strategies and activities.

Join us September 9 – 11, 2026 in Boston, MA, David Rubenstein Treehouse at Harvard University. Connect with leading experts and drive meaningful change in rare disease research. 

David Rubenstein Treehouse
Harvard University
20 Western Ave, Boston, MA 02134

Have questions about the event or how to get involved? Email [email protected].

Agenda

Wednesday, September 9
from 8:30am – 7:00pm
(Evening Reception)

Thursday, September 10
from 8:30am – 7:30pm
(Evening Reception)

Friday, September 11
from 8:30am – 12:30pm

Included:

  • 2 Keynotes
  • 6 General Sessions
  • Multiple Interactive Workshops
  • Expert Office Hours
  • Networking Opportunities
  • Pitch Session Workshop

The 2026 RARE Drug Development Symposium
owes its success to our valued Collaborators:

Interested in supporting or exhibiting at the RARE Drug
Development Symposium?

Request Prospectus

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