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World Rare Disease Day

February 28th, 2022

Held the last day of February each year, World Rare Disease Day is an annual observance to raise awareness for 400 million people affected by rare disease globally. Here’s what can you do to help elevate the cause and shine a light on rare disease patients and caregivers around the world.

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Empower

RARE Diseases List

We have nearly 6,000 rare disease indexed with information, trials, news, support organizations and more.

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Resource Hub

Visit the resource hub to download toolkits, watch webinars, and get information on important topics like gene-based diagnosis, financial advocacy, drug development, and more.

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RARE Concierge

Try our free one-on-one service for patients looking for information and resources on their rare disease.

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Inspire

RARE Daily

Rare Disease Dealmaking Heats Up in August

Rare disease drug developers maintained a steady lead in their financing and dealmaking numbers through August, with dealmaking heating up

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Together We Can Change Lives

7000

Distinct Types of Rare and Genetic Diseases

400

Million People Suffer From a Rare Disease Globally (greater than the population of the U.S.)

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Children with a Rare Disease Won’t Live to See Their 5th Birthday

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Patients Diagnosed with a Rare Disease is a Child

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