WHO
We Are
We are advocates, partners and collaborators who are relentless in our efforts to affect change.
We are advocates, partners and collaborators who are relentless in our efforts to affect change.
To eliminate the daily challenges for 1 in 10 people affected by rare disease.
We empower patients, build communities & drive forward momentum for rare disease globally.
Types of Rare Diseases
Million People Suffer From a Rare Disease Globally (greater than the population of the U.S.)
Children with a Rare Disease Won’t Live to See Their 5th Birthday
Patients Diagnosed with a Rare Disease is a Child