What would you say if you had 15 seconds to advocate for a rare disease?
Would you tell them about the statistics? Would you talk about the person you know who is struggling with their disease? The sister or brother, friend or co-worker who struggles to find treatments and support? Or would you talk about your own diagnosis and how it’s existence has changed your world?
Global Genes is proud to launch the #15ForRARE Campaign—a social media video movement highlighting the individual voice in the RARE Community. A chance to voice why you care about rare and why others should care as well! This movement is for patients, advocates, and industry alike. Through participation in this campaign, #15ForRARE video activists (YOU!) become advocates for the rare disease community!
Now is your time to speak up and tell the world why you “Care About RARE!”
Through our individual voices we will unite and bring attention to a community that so deserves it.
Here’s how you get involved and be added to Global Genes’ Advocate Video
• Film yourself “selfie” style answering the prompt “I care about rare because…”
•Video must be no longer than 15 seconds
• Video must be uploaded to our entry form, found here.
• Video must be posted on at least one social media platform (Facebook, Twitter, Instagram, Youtube, Vimeo) with the hashtag #15ForRARE and #GlobalGenes
And thats it!
We will be using the videos submitted to us for cause marketing as well as will feature them at our RARE Patient Advocacy Summit!
We can’t wait to see your #15forRARE!