Your tax-deductible gift makes it possible for our partners and team to continue providing information, resources, and connections to all communities affected by rare disease. 100% of your donation will help fund resources to strengthen our goal in eliminating the challenges faced by rare disease patients (more than 400 million worldwide). See why your donation matters.

This is Why Your Donation Matters

 

justin-giving-tuesday

 

 

Meet The Kramer Family

 

 

miriam-story

 

 

Meet the Puerto Rican Association of Hemophilia and Bleeding Conditions: