Questions on Caregiving? Ask the Experts Today!

November 18, 2013

Global Genes  | RARE Project will be hosting a webinar this week on November 21st at 11:00AM PT (90M) and we’d like to invite YOU to participate in the conversation. The topic of the webinar is on caregiving: “Taking Care of Yourself While Taking Care of Your Loved Ones.”

How can you participate? Send us your questions on caregiving! Email your question for one of our expert panelists to answer live, during the event! And make sure to attend the webinar. Register here!

Have you ever been stumped by how to help a patient or their family? What resources are out there for caregivers? What can hospitals do to provide for spouses or parents taking care of chronically ill family members? How can we find a balance between taking care of ourselves and others?

If you or anyone you know have questions like these, you can send them to our Project Manager, Katie Mastro at




Caregivers Webinar:  Taking Care of Yourself While Taking Care of Your Loved Ones
November 21, 2013 – 11:00 am PT (90 minutes)

Register today!

In celebration of Caregiver Month (November), this session will explore the psycho/social aspects of caregiving and provide resources, ideas, and practical advice on how to strike a balance between caring for others and caring for yourself.


  • David Milam, Caregiver Spouse to a wife with Pompe Disease
  • Gloria Klaesges, Caregiver, Parent to a child with Hurler’s Syndrome, Family Ties Massachusetts
  • Kathleen Coolidge, LICSW, Associate Director, US Patient Advocacy, Genzyme, a Sanofi Company
  • Lisa Winstel, Caregiver Action Network

Moderator: John Schall, Caregiver Action Network
Caregiver Action Network



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