Welcome to the RARE Portal!

Whether you’re a rare disease patient, caregiver, advocate or family member, the RARE Portal is the platform for you. You can share your story, find like-minded community members, create and join rare disease events and most of all, find meaningful resources that are customized for you. Come on in!

Do you have feedback and suggestions for the RARE Portal? We’d love to hear from you. Global Genes is committed to making this a user-friendly space to advance knowledge and skills in rare disease. Contact Us


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