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Connect with like-minded patients and advocates across the globe

Engage with members of your disease community, share resources and get involved.

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Connect and engage with others like you through discussions. Would you like an invitation to join our new RARE Portal community?

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Rare Concierge

Try our free one-on-one service for patients looking for information and resources on their rare disease.

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Global Advocacy Alliance

Our partners include nonprofit, government, academic, research, service, and industry organizations that believe collaboration is the key to positive change. Join us.  

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Rare Corporate Alliance

We are a coalition of rare disease industry stakeholders committed to collaboration between industry and patient communities to improve and expedite access to effective therapies for all rare patients. 

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Community Highlights

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