Rare disease affects 350 million people worldwide. Read about the connections that bond us, the moments that challenge us and the accomplishments that help us persevere.

May 16, 2022
RARE Global Advocacy Alliance Member Spotlight: Caryl Harris
Read More
April 26, 2022
Christina Hartman: Rare Mom, Advocate, Professional
Read More
April 25, 2022
Caroline Loewy: Rare Mom, Advocate, Non-Profit Extraordinaire
Read More
April 24, 2022
John Crowley: Rare Dad, Advocate, Researcher, Entrepreneur
Read More
April 24, 2022
Irie Long: Rare Partner & Advocate
Read More
April 23, 2022
Effie Parks: Rare Mom, Podcaster for Once Upon a Gene
Read More
April 22, 2022
Daniel DeFabio: Rare Dad, Filmmaker, Advocate
Read More
April 20, 2022
RARE Global Advocacy Alliance Member Spotlight: Melissa Bryce
Read More
April 5, 2022
Foundation Alliance Upgrades to Global Advocacy Alliance
Read More
February 3, 2022
RARE Foundation Alliance Member Spotlight: Kris Pierce
Read More
August 12, 2021
Global Genes Grant Awardee Achieves Goal of Designating 6 Global Centers of Excellence for Life-Threatening Disorder
Read More
August 3, 2021
RARE Foundation Alliance Member Spotlight: Jennifer Meyer
Read More
Read More
X