Rare disease affects 350 million people worldwide. Read about the connections that bond us, the moments that challenge us and the accomplishments that help us persevere.

August 6, 2019
When the World Gets Dark, Kristin Smedley Shines a Light
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June 3, 2019
Medical Students Learn About Zebras Through Patient Matching Program
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May 16, 2019
Peroxisomal Disorders Reach New Heights with Help from the RARE Patient Impact Grant
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April 24, 2019
Challenges Lead to Achievements
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December 28, 2018
Rare Leader: Christine Waggoner, President and Co-Founder, Cure GM1 Foundation
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December 20, 2018
Rare Leader: Brad Crittenden, Executive Director, Canadian Association of Pompe
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December 13, 2018
Gilbert Family Foundation Announces $12 Million Gene Therapy Initiative in NF1
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