You’re not alone.

When you’re here, you’re part of a globally connected community committed to eliminating the challenges of rare disease. Global Genes is committed to providing information, resources and connections to all communities affected by rare diseases.

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What is RARE Concierge Patient Services?

Our RARE Concierge patient service guides are here to help you navigate the complicated world of rare and undiagnosed diseases. No matter where you are in the world, your journey, or what your unique need is, RARE Concierge can help you.

Our team has decades of personal and professional experience in rare disease advocacy and support. As patients, caregivers, and advocates, we understand the challenges you and your family face. RARE Concierge can provide resources, education, and important connection free of charge.

Impact at a glance

Quick facts on the effects of rare disease

Learn More Facts About Rare Diseases

Distinct types of Rare and Genetic Diseases


Million People Suffer From a Rare Disease Globally

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Patients Diagnosed with a Rare Disease is a Child

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Children with a Rare Disease Won’t Live to See Their 5th Birthday

Search the RARE List

For more resources, disease-specific information, and news,  search our RARE List- an extensive list of rare diseases and rare conditions.

Search Our Full RARE List

Rare Concierge

Try our free one-on-one service for patients looking for information and resources on their rare disease.

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