RAREly Told Stories Resources

Tips and resources for telling your rare disease story on video

Have you wanted to tell the story of your life with a rare disease as a documentary or a short video?

Global Genes has partnered with The Disorder Channel to present workshop trainings to get you ready to make your story into a short film.

First Steps

The best way to start is to attend one of our virtual workshops. We have two coming up in 2024 but if you miss them or just want a deeper dive into some of the resources used in the workshops we have them collected on this page.

A Deeper Dive

You can use the resources listed below to learn at your own pace. We suggest the order they are listed in but feel free to jump to what interests you most.

How to Interview Well on Zoom

Tips for Beginning (Rare Disease) Filmmakers

How Sharing Your Story Can Help Raise Awareness

Parvathy Krishnan, Effie Parks, Luisa Leal, and Daniel Defabio talk about sharing your rare disease story to raise awareness.

Making Your Own Rare Disease Film

A Great Way to Figure Out What You Want to Say

Filming Tips from More Industry Experts

Pre-Production Part 1

Rare disease filmmaker Dina Rudick of Anthem Media talks us through the steps as part of the Rarely Told Stories workshop series.

Watch Tutorial

Pre-Production Part 2

The basics of how to plan for a rare disease documentary. Filmmakers call it pre-production but you’re probably already good at it.

Watch Tutorial

Shooting a rare film on your phone

Kimberly Warner talks the basics of how to use your phone to shoot video for a rare disease documentary and still get great results.

Watch Tutorial

Editing Video

How and Why We Edit

A very basic introduction to how video editing software works and why you would make edits to a video.

Watch Tutorial

How to Edit a Video Documentary

Emmy nominated filmmaker Jon Garcia goes over the basics of cutting together an interview scene and adding b-roll footage to start editing your rare disease documentary.

Watch Tutorial

Video Editing Basics

Learn the basics of video editing for rare disease films from filmmaker Lexi Pappas.

Watch Tutorial

Avoiding Jump Cuts

A brief look at how edits can create jump cuts and 3 techniques to avoid them showing up in your edits.

Watch Tutorial

B-Roll Basics

What is B-roll? When should you use it? How to shoot B-roll? What to do if you don’t have any B-roll.

Download Toolkit