Events
2023 RARE Advocacy Summit Live Stream – Becoming a Research Ready Organization
Watch Live September 19 and 20, 2023
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Sessions from Track 3: Becoming a Research Ready Organization will be live streamed here September 19 and 20, and may be watched on demand in October.
Sessions from other tracks will be available to view by clicking the links below:
Help rare disease patients more effectively navigate the world of healthcare and legislative action
Help rare disease organizations expand their reach and improve their effectiveness
Help patient advocacy groups develop and execute a research agenda to accelerate the development of therapies
Hear from drug development experts guiding rare disease advocates through the different therapeutic modalities
Streaming Schedule
* Please note that some sessions listed on the agenda are networking or one-on-one opportunities, and are not available to live stream.
Create Your Strategy: The Rare Research Roadmap
Tuesday, September 19, 2:15-3:00pm PT / 5:15-6:00pm ET
Developing Scientific Expertise to Drive Research Strategy
Tuesday, September 19, 3:15-4:00pm PT / 6:15-7:00pm ET
Using Data Collection to Improve Outcomes
Tuesday, September 19, 4:15-5:00pm PT / 7:15-8:00pm ET
Becoming Clinical Trial Ready
Wednesday, September 20, 10:00-10:45am PT / 1:00-1:45pm ET
Pre-Clinical Research: Why and When to Invest
Wednesday, September 20, 11:00-11:45am PT / 2:00-2:45pm ET
Crafting a Data Sharing Strategy
Wednesday, September 20, 12:00-12:45pm PT / 3:00-3:45pm ET
Power of Partnering: Children’s Hospital Colorado
Wednesday, September 20, 2:00-2:45pm PT / 5:00-5:45pm ET
Power of Partnering: Rosamund Stone Zander Translational Research Neuroscience Center
Wednesday, September 20, 3:00=3:45pm PT / 6:00=6:45pm ET
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