2023 RARE Advocacy Summit Live Stream – Becoming a Research Ready Organization

Watch Live September 19 and 20, 2023

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Sessions from Track 3: Becoming a Research Ready Organization will be live streamed here September 19 and 20, and may be watched on demand in October.

Sessions from other tracks will be available to view by clicking the links below:

Help rare disease patients more effectively navigate the world of healthcare and legislative action

Help rare disease organizations expand their reach and improve their effectiveness

Help patient advocacy groups develop and execute a research agenda to accelerate the development of therapies

Hear from drug development experts guiding rare disease advocates through the different therapeutic modalities

Streaming Schedule

* Please note that some sessions listed on the agenda are networking or one-on-one opportunities, and are not available to live stream.

Create Your Strategy: The Rare Research Roadmap
Tuesday, September 19, 2:15-3:00pm PT / 5:15-6:00pm ET

Developing Scientific Expertise to Drive Research Strategy
Tuesday, September 19, 3:15-4:00pm PT / 6:15-7:00pm ET

Using Data Collection to Improve Outcomes
Tuesday, September 19, 4:15-5:00pm PT / 7:15-8:00pm ET

Becoming Clinical Trial Ready
Wednesday, September 20, 10:00-10:45am PT / 1:00-1:45pm ET

Pre-Clinical Research: Why and When to Invest
Wednesday, September 20, 11:00-11:45am PT / 2:00-2:45pm ET

Crafting a Data Sharing Strategy
Wednesday, September 20, 12:00-12:45pm PT / 3:00-3:45pm ET

Power of Partnering: Children’s Hospital Colorado
Wednesday, September 20, 2:00-2:45pm PT / 5:00-5:45pm ET

Power of Partnering: Rosamund Stone Zander Translational Research Neuroscience Center
Wednesday, September 20, 3:00=3:45pm PT / 6:00=6:45pm ET

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