2023 RARE Advocacy Summit Livestream – Community and Capacity Building

Watch Live September 19 and 20, 2023

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Sessions from Track 2: Community and Capacity Building will be live streamed here September 19 and 20, and may be watched on demand in October.

Sessions from other tracks will be available to view by clicking the links below:

Help rare disease patients more effectively navigate the world of healthcare and legislative action

Help rare disease organizations expand their reach and improve their effectiveness

Help patient advocacy groups develop and execute a research agenda to accelerate the development of therapies

Hear from drug development experts guiding rare disease advocates through the different therapeutic modalities

Streaming Schedule

* Please note that some sessions listed on the agenda are networking or one-on-one opportunities, and are not available to live stream.

Beginner’s Guide to Community Activation
Tuesday, September 19, 2:15-3:00pm PT / 5:15-6:00pm ET

Why Genetic and Genomic Testing is Key to Increased Diagnosis
Tuesday, September 19, 3:15-4:00pm PT / 6:15-7:00pm ET

Developing Sustainable Funding Models
Tuesday, September 19, 4:15-5:00pm PT / 7:15-8:00pm ET

Develop a Long-Term Growth Strategy
Wednesday, September 19, 10:00-10:45am PT / 1:00-1:45pm ET

Expanding Your Global Reach
Wednesday, September 19, 11:00-11:45am PT / 2:00-2:45pm ET

Working Nicely in the Same Sandbox – How Patient
Groups Can Work Together, Not Against Each Other
Wednesday, September 19, 2:00-2:45pm PT / 5:00-5:45pm ET

Supporting Your Rare Community’s Mental Health
Wednesday, September 19, 3:00-3:45pm PT / 6:00-6:45pm ET

Financial Support for Your Community Members
Wednesday, September 19, 4:00-4:45pm PT / 7:00-7:45pm ET

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