Today’s rare disease advocates are on the forefront of drug development – whether in fundraising, raising awareness, kickstarting research, developing research roadmaps, or even starting their own biotech company. Global Genes wants to make this journey easier for rare disease advocates by helping them find and be involved in their disease community, providing toolkits and educational resources, and providing access to a data collection platform through the RARE-X program.
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This video includes interviews that were filmed at the 2023 RARE Drug Development Symposium, May 1-3 in Philadelphia, Pennsylvania. For more information about this event, or to become involved in next year’s event, please visit https://globalgenes.org/event/rare-disease-drug-development/
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