RAREly Told Stories Workshop

February 27, 2024

Have you wanted to tell your rare disease story as a documentary or a short video?

Global Genes has partnered with The Disorder Channel to present workshop trainings to get you ready to make your story into a short video or documentary. This workshop will provide you with the tools and information necessary to get started!


Daniel DeFabio
Director of Community Engagement at Global Genes
Co-founder The DISORDER Channel

Melody Joy Paine
Founder of Imperfect Joy

Joy Kimberly Warner
Award-winning filmmaker
Founder of Unfixed Media

Your story matters, and this workshop can help you capture it and share it.

Stay Connected

Sign up for updates straight to your inbox.