Diagnosis RDDS 2022 Webinar: Getting Your Community Ready for Clinical Trials This is the second in a series of three videos in conjunction with the Rare Drug Development […] Read more
Diagnosis Grandparents as Caregivers: Patient Advocacy Summit Session Grandparents as Caregivers was part of the Caregivers Track at the Patient Advocacy Summit in San Diego, […] Read more
Diagnosis The RARE Siblings Experience: Patient Advocacy Summit Session The RARE Siblings Experience puts the focus on the siblings of individuals with rare disease at the […] Read more
Coronavirus (COVID 19) Resources Coming together to help each other thrive is what the rare disease community does best. As […] Read more
