Holistic Help for Rare Diseases? Our Expert Weighs In on the Possibilities

Genie James serves as the CEO of Randolph Medical Enterprises.

“A strong word of caution,” says holistic health expert, Genie James M.M.Sc. “The ‘fear factor’ in parents of children with a rare disease will be in overdrive, making them an easy target for medical charlatans, preying on hopes and wallets.” Which makes sense because if […]

Celiac Disease – Is it a Rare Disease or Not?

Cheryl went 25 years before being diagnosed with Celiac Disease, once thought to be a rare childhood disease

Editors note:  Celiac Disease was once thought to be a rare childhood disease and many physicians were taught that it affected roughly 1 out of 5,000 children. Today, Celiac Disease is recognized as a common condition that is primarily a disease of adulthood. A University of […]

Emily’s Hope Against Vascular Ehlers-Danlos Syndrome: A Lesson For Us All

Vascular_Ehlers_Danlos_Syndrome_Emily

The WHOLE WIDE WORLD should know there is a girl in central Florida with a beautiful smile, and an even more beautiful soul whose name is Emily and who is in very, very poor health right now.  To say she is fighting Vascular Ehlers-Danlos syndrome […]