From Our Affiliates

Tag: research

A total of 30 posts are filed under research
Screen Shot 2015-03-16 at 12.49.05 PM
Novartis: Why Research into Rare Diseases Matters
Addressing significant unmet medical need is a cornerstone of Novartis strategy and why we spend so much time and energy researching rare… Continue Reading
Screen Shot 2015-03-04 at 4.17.13 PM
Global Genes: White Paper, The Must-Have Collaborations for Successful Drug Development
The team at Global Genes is happy to present a new White Paper that was developed to expand the dialogue on this important topic, that first… Continue Reading
Image credit: Laura Riedel
Washington Post: How to Get Researchers to Notice an Ultra-Rare Disease
(Published originally in the Washington Post) It wasn’t until she read her husband’s autopsy report that Kathy Brewer learned his… Continue Reading
1412369883000-ebola-strain
Researchers Study Ebola Link to Gene in Rare Disease
In the search for answers about Ebola, researchers are starting to look at an unexpected group of people: parents with children who have the… Continue Reading
3d Chromosome
New Study on CAID Syndrome Links Heart and Gut
Physicians and researchers at CHU Sainte-Justine, Université de Montréal, CHU de Québec, Université Laval, and Hubrecht Institute have… Continue Reading
medication-2
Experts Ask India to Lead R&D in Rare Disease Drugs
Drug industry experts have called upon the Indian government to frame a policy on rare diseases to provide cure for 10 crore people… Continue Reading
Screen Shot 2014-08-11 at 8.49.35 AM
Target Identified For Rare Inherited Neurological Disease In Men
Researchers at University of California, San Diego School of Medicine have identified the mechanism by which a rare, inherited… Continue Reading
1 2 3 5
Share Your Patient Story
i-wear-my-ribbon
be-a-guest-blogger

Follow us on Twitter