From Our Affiliates

Tag: Undiagnosed

A total of 32 posts are filed under Undiagnosed
IMG_4999
Mysterious Genetic Condition Complicates Life for Milo: Family Reaches Out
Our beautiful son, Milo, was born in December 2010. He has had a complicated life since then, with six surgeries and undiagnosed global… Continue Reading
Screen Shot 2014-07-23 at 1.02.07 PM
UK Girl Dies After Doctors Fail to Diagnose Addison’s Disease
A “VIVACIOUS and lively girl” died after her rare medical disorder went undiagnosed by doctors. Clare Cooper died aged 24 in… Continue Reading
Photo2
Undiagnosed with Developmental Milestones, Parents of Noah, 6, Still Search for Answers
Our son, Noah, just turned six. He is a bright, happy boy who loves to swim, read books, and play on his iPad. He uses a walker, or a… Continue Reading
Screen Shot 2014-06-18 at 9.45.36 AM
Undiagnosed Children’s Support Group Meeting in California
“I could not find a local support group for families with undiagnosed children,” said group leader, Caroline Cheung. “It… Continue Reading
Lizzy-museum-of-natural-science-192
Lizzy Undiagnosed: Looking for Answers
My name is Lori Sedlachek, mother to Lizzy who is 3 years and 4 months old. She is basically non-verbal. We had her social skills evaluated… Continue Reading
Screen Shot 2014-06-04 at 11.11.32 AM
Groundbreaking Documentary on Undiagnosed Disease Seeks $150K in Crowdfunding to Change Future of Medicine
Millions of people worldwide live everyday with perplexing, undiagnosed illnesses that remain a mystery to their doctors. For the first time… Continue Reading
1052160_10100708297772491_240560530_o-2
I Have a Monster Called RSD–But RSD Doesn’t Have Me!
In 2000, at the age of 13, I was diagnosed with a monster: RSD. Reflex sympathetic dystrophy (RSD) is characterized by a group of symptoms… Continue Reading
1 2 3 5

Follow us on Twitter