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Tag: Undiagnosed

A total of 37 posts are filed under Undiagnosed
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Undiagnosed Eli: “We are Not Going to be the Same Family We Were”
Everything started when our third son, Eli, was four-months-old and suddenly collapsed at home. We called 911 and Eli was taken to the ER… Continue Reading
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“We Called it Bridgetitis” Genetic Sequencing Points to PACS1
My daughter, Bridget, was born with an unknown genetic syndrome. With over 15 specialists caring for her, Bridget continued to mystify the… Continue Reading
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The Six Moments You Most Hated Being Undiagnosed
That life-long, never-ending diagnostic odyssey you’ve been on for 8+ years? Yeah. You’re pretty much over it by now. Some people may… Continue Reading
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Jump for Jude! (Out of a Plane, That Is!)
What would you do for a family in need? Jump out of a plane? That’s what two supporters of one young boy are willing to do if it means… Continue Reading
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Honoring the Undiagnosed, French BioBeach Fall Regatta 11/15
This 3rd edition of the French BioBeach Fall Regatta, has a goal to initiate efforts to raise awareness for undiagnosed children. Join… Continue Reading
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Mysterious Genetic Condition Complicates Life for Milo: Family Reaches Out
Our beautiful son, Milo, was born in December 2010. He has had a complicated life since then, with six surgeries and undiagnosed global… Continue Reading
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UK Girl Dies After Doctors Fail to Diagnose Addison’s Disease
A “VIVACIOUS and lively girl” died after her rare medical disorder went undiagnosed by doctors. Clare Cooper died aged 24 in February… Continue Reading
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