World Rare Disease Day 2014

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World Rare Disease Day is an annual observance held on the last day of February (February 28th or February 29th in a Leap Year) to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare and genetic diseases and their families.

The seventh annual World Rare Disease Day will be held on Friday, February 28, 2014. On this day, various activities take place in the United States, Europe, Russia, Japan and elsewhere around the world.

How To Get Involved

Global Genes | RARE Project will hold a variety of awareness raising activities during the month of February leading up to World Rare Disease Day.  Please join patients, families, friends, caregivers, scientists, physicians, researchers, health care providers, policy experts and our team in 2014 to raise rare and genetic diseases awareness. Here are ways you can get involved!

For more information, please contact Carrie Ostrea, Advocacy Director of Global Genes | RARE Project.

 


Our popular campaign encouraging people to wear the Blue Denim Genes Ribbon™ and their favorite pair of jeans.
Place your order today to receive your Genes Ribbons in time for Rare Disease Day!
Place your order today to receive your Genes Ribbons in time for Rare Disease Day!
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Find unique, creative, and fun ideas for rare disease day events you can host. Already have an event planned? Share it with our community!
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Join Global Genes and Rare Disease Legislative Advocates (RDLA) for scheduled events February 25th – February 28, 2014.

 

Join our social media “rare disease day” campaign by changing your profile
and cover pictures to share how important rare disease awareness is to you!