Patient Advocacy Summit 2014: E-Patient Revolution

This session is presented by Health 2.0 and Smart Patients.

One session. Three segments. Everything you need to know about the E-Patient Revolution and how you can help pull patients in need out of isolation and into the open network of health information.

Together, we have the opportunity to share knowledge in the effort to get the best treatment possible.  Patient networks, especially for the rare disease community, the processes of diagnosis, treatment, and even basic research are being improved directly by patients

Want to learn even more? This segment’s “Deep Dive” sessions will include:

• “The Power of Putting Information into the Hands of Patients” by Caresync’s Courtney Larned.
• “Patient Driven Research: Putting Patients at the Center of Clinical Trials from Start to Finish” by Smart Patient’s Gilles Frydman.
• “Tools and Strategies to Fast-track Patient Engagement” by The Empowered Patient Coalition’s Julia Hallisy.
• “Benefits of Using Online Community Building Tools for Effective Advocacy and Support” by Ben’s Friends John Stamler.
• “Move Beyond Anecdotes: a Blueprint for Patient-Driven Research by Althea Health’s Manu Kodiyan and CysticLife’s Ronnie Sharpe.

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Indu Subaiya

Indu Subaiya, Co-Chairman & CEO, is responsible for Health 2.0’s strategic direction and incredible production values. She started her career in health technology assessment at Quorum Consulting and then served as VP of Healthcare at Gerson Lehrman Group, an investment research firm. Before co-founding Health 2.0 she was Entrepreneur-in-Residence at Physic Ventures, where she helped evaluate companies. When she is not running Health 2.0, she applies her producing and directing skills to making film.

Session Participants:

Roni Zeiger

Roni Zeiger, MD, is the former Chief Health Strategist at Google, where he led efforts ranging from Google Flu Trends to Symptom Search. In 2012, he and Gilles Frydman founded Smart Patients, an online community where patients and caregivers learn from each other about treatments, the latest science, and how it all fits into the context of their experience. Roni serves as CEO of Smart Patients and continues to see patients part time at a local urgent care center.

Dr. Julia Hallisy

Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery. Since that time, she has been a full-time practicing San Francisco dentist. 

Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. She has worked with the California Nurses Association on the proposition 216 campaign for HMO reform, spoken at rallies to promote legislation on a Patient’s Bill of Rights and spoke on Futile Care Policies. Dr. Hallisy most recently worked with AARP on a patient advocate journal and has lobbied for health care reform in Washington, DC with Consumer’s Union.

Can’t attend in person? You can’t afford to miss this! Our new Livestream component will allow up to 5,000 interested advocates from around the globe to attend virtually. The event will be broadcast live with opportunities for patients to participate from afar using social media, including twitter and Facebook. Follow using #2014GGSummit

To view the full schedule of events click here.

To register to attend the summit in person, click here.