Primary cutaneous peripheral T-cell lymphoma not otherwise specified
Synonyms: Primary cutaneous peripheral T-cell lymphoma NOS | Primary cutaneous unspecified peripheral T-cell lymphoma
An extremely rare primary cutaneous T-cell lymphoma disorder characterized by solitary or multifocal and diffuse cutaneous lesions ranging from tumor-like patches plaques papules nodules and/or erythroderma located on any area of the body which rapidly progress and may become ulcerated and/or infected. Systemic involvement may be associated.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Reference: Access aggregated data from Orphanet at Orphadata.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version April 2024
Newly diagnosed with
Primary cutaneous peripheral T-cell lymphoma not otherwise specified?
Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.
Advocacy Organizations
Cutaneous Lymphoma Foundation
Judy Jones, Judith Shea, and Dr. Stuart Lessin, frustrated with the lack of reliable information about cutaneous lymphomas, started the Mycosis Fungoides Foundation (now the Cutaneous Lymphoma Foundation) in 1998 The Cutaneous Lymphoma Foundation is an independent, non-profit patient advocacy organization dedicated to supporting every person with cutaneous lymphoma by promoting awareness and education, advancing patient care and facilitating research.
Clinical Trials
For a list of clinical trials in this disease area, please click here.