Related
Why Sharing Your Rare Disease Story Can Help
Rare disease advocates (and Global Genes staff!) talk about the importance of sharing your story, and how […]
Read more2024 RARE Mental Health Grant Recipients Announced
Global Genes is pleased to announce the rare disease patient advocacy organizations receiving 2024 RARE Mental Health […]
Read more2024 RARE Research Readiness Fellowship Recipients Announced
Global Genes is pleased to announce the rare disease patient advocacy organizations receiving 2024 RARE Research Readiness […]
Read moreZohreh Talebizadeh, Ph.D., Serves on Plenary Panel Session at Gatlinburg Conference
Zohreh Talebizadeh, Ph.D., Senior Director of the RARE-X Research Program for Global Genes, served on the Association […]
Read moreShundra Wooten on her short film “Keep It Moving”
Shundra Wooten was diagnosed with Spinocerebellar Ataxia 3, and made a short film “Keep It Moving” to […]
Read moreShantel Sonier on “Glitching with Nick”
Shantel Sonier, a rare mom and caregiver to Nick, who was diagnosed with GRIN2A, created the short […]
Read moreLesley Holroyd on her short film “Born to be Heard”
Lesley Holroyd, who lives with congenital adrenal hyperplasia, discusses what she learned about filmmaking and telling her […]
Read more“Miss Diagnosis” breaking the rules with Tara Rule
Daniel DeFabio, Director of Community Engagement for Global Genes, spoke to Tara Rule about what rules should […]
Read moreNational DNA Day: Cracking the Code on Rare Diseases and Unlocking Hope
by Shruti Mitkus, Ph.D. National DNA Day is celebrated each year on April 25th to commemorate the […]
Read more