GLOBAL GENES™ Launches “RARE Toolkits” as Premier Educational Resource for the Rare Disease Community

Series of RARE Disease Toolkits Enable Advocates, Patients and Caregivers to Empower Themselves and Inspire Others With 1 in 10

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GLOBAL GENES™ Launches “RARE Toolkits” as Premier Educational Resource for the Rare Disease Community

Series of RARE Disease Toolkits Enable Advocates, Patients and Caregivers to Empower Themselves and Inspire Others With 1 in 10

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Five Rare Disease Toolkits Every Patient and Parent Should Read

As A Rare Disease Patient or Parent Advocate, we know that so often you’ve felt an overwhelming frustration with the

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Mini Toolkits Based on Popular 2015 RARE Webinars Launch

Approximately 80 percent of the close to 7,000 rare diseases are caused by genetic changes. Although many people may value

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New Educational Toolkits from Global Genes Demystify Rare Community’s Biggest Problems

Ask any parent to whip out their highlighted copy of the latest edition of Parenting a Child with a Life-Limiting

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New Educational Toolkits from Global Genes Demystify Rare Community’s Biggest Problems

Ask any parent to whip out their highlighted copy of the latest edition of Parenting a Child with a Life-Limiting

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Rare Leader: Karen Durrant, President, Autoinflammatory Alliance

The BasicsName: Karen Durrant RN, BSN Title: President/Founder of the Autoinflammatory Alliance Organization: Autoinflammatory Alliance Social Media Links: Disease focus:

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Taking Control: Optimizing Your Potential as a Young Adult With a Rare Disease

 

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Taking Control: Gaining Independence As A Young Adult With A Rare Disease

   

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Exploring Treatment Options For Rare Disease: Cord Blood Transplants

   

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Bringing Rare Disease To Capitol Hill: Advocating For Your Cause

   

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New Toolkits by Global Genes Educate Patients on Gene Therapy and Health Insurance

Over the past few years Global Genes has been providing patients with easy to understand guides or “toolkits” on everything

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