Connexion Healthcare Co-Sponsors Pennsylvania’s Celebration of Rare Disease Day 2015

“Alone we are rare… together we are strong” – Kyle Bryant, Friedreich’s Ataxia Patient Advocate On February 24, 2015, Connexion

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FDA Awards 15 Grants for Clinical Trials to Stimulate Product Development for Rare Diseases

Rare Daily Staff The U.S. Food and Drug Administration said it awarded 15 new clinical trial research grants totaling more

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Uncertainty But Relief for Family of 3-Year-Old Girl Finally Diagnosed Through Genetic Testing

BY CAITLIN KEATING @caitkeating for People Magazine. Thanks to People Magazine for this story. Kristen and Clayton Greene quickly went from having a healthy

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Patient Advocacy Summit 2014: The Unstoppable Charity

We all have our reasons. Sons, daughters, parents and friends—it’s a guarantee that anyone managing this sort of charity non-profit

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