Atypical HUS Meetup on May 30th/31st in Seattle
May 13, 2014
Global Genes and the Foundation for Children with Atypical HUS Invite Patients and Families Living with aHUS To Special Regional Meetings
Finding out that you or a loved one has atypical hemolytic uremic syndrome (aHUS) can be difficult. But you are not alone. In fact, sharing experiences with other patients and families affected by aHUS can help decrease isolation and provide valuable information and support. Meet other families affected by aHUS to discuss the challenges of living with aHUS and new strategies for managing the disease and gain valuable information and support:
- Disease and treatment
- The effect of isolation on patients and families
- Challenges of being an adult patient versus a family with a sick child
- Resources and support for patients, families and caregivers
- Connecting and maintaining relationships with other aHUS families
|Seattle, Washington||May 30 and 31, 2014||details|
This event is supported by an educational grant from Alexion Pharmaceuticals, Inc.
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