The Balancing Act® on Lifetime® to Air Special Segment with Aegerion Pharmaceuticals in Support of FH Awareness Day September 24

September 23, 2014

The Balancing Act® on Lifetime® to Air Special Segment in Support of FH Awareness Day September 24    

 Special edition airing on September 24th FH Day will focus on raising awareness around the rare form of the disease, homozygous familial hypercholesterolemia, and providing education and support for patients and families; show is part of the  Behind the Mystery: Rare and Genetic Diseases series  

September 24th is FH Awareness Day and the award-winning show The Balancing Act, the only morning show that features rare disease education, in partnership with Aegerion Pharmaceuticals will dedicate a special segment to raising awareness about HoFH on Wednesday, September 24 at 7:00 am (ET/PT) on the Lifetime channel.

The Balancing Act® is proud to have Global Genes™ as an advocacy partner for the “Behind the Mystery: Rare and Genetic Diseases” series as both are dedicated to increasing rare disease awareness around the world, and connecting families trying to cope.

“Global Genes’ primary goal has always been to bring information and resources to rare and genetic disease patients globally. Working in partnership with The Balancing Act has allowed us to expand our efforts in creating powerful, informed patients,” said Nicole Boise, Founder & CEO, Global Genes.

HoFH or homozygous familial hypercholesterolemia is a severe, rare genetic condition inherited from both parents who typically have the less severe and more common form of the disease heterozygous FH.  A person with HoFH can have elevated LDL cholesterol levels that are up to three-to-ten times normal levels. Both forms of the disease are rarely diagnosed and differentiated from the more common run-of-the-mill high cholesterol.  Diet, exercise and commonly used medications don’t lower the cholesterol to a recommended level. The excessive constant exposure to high cholesterol levels since birth often lead to blockages in the arteries of the heart and/or brain early in life.  If left under-treated HoFH can lead to premature death.

Dr. Pamela Morris, Cardiologist, Amanda, a 20 year old patient, and Katherine Wilemon from the FH Foundation will join the show to talk about the signs, symptoms and what everyone should know about this condition that runs in the family – including that there are treatment options that have been approved in the last year for adults with this disorder.

For more information, please go to:


About The Balancing Act® on Lifetime Television

Now in its 6th year, The Balancing Act® continues to empower women in all aspects of their lives. The mission at The Balancing Act® is simple — the show strives to help today’s modern woman balance it all by bringing them exceptional solutions to everyday problems. Entertaining, educational and trusted by women, viewers can watch America’s premier morning show The Balancing Act® weekday mornings on Lifetime television at 7 am (ET/PT). For additional information or to view a segment visit:

The Balancing Act’s ongoing “Behind the Mystery: Rare and Genetic Diseases” series provides viewers with treatment information, and helps educate and empower patients, their families, caregivers and the medical community.

To learn more aboutthe Behind the Mystery: Rare and Genetic Diseases” projects, and the participants who have been on the series, please visit:

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