FindaCure Launches New Online Portal
September 25, 2016
To add to many of their exciting online projects this year, FindaCure has launched a new online portal to give patients, advocates and organizations a chance to connect in an even more direct medium.
The portal is a central hub of information and training for rare disease advocates, patient groups, and charities. It aims to encourage and empower the formation of new patient groups, enable existing patient organisations to grow and provide better support, and build the rare disease community by facilitating communication between users.
Their courses contain written guides, animated videos, presentations, and webinars to explain topics such as setting up a new organisation, good communications, fundraising, partnering with researchers and pharma, and supporting clinical trials. You can also connect to fellow users to ask questions and share your own knowledge in dedicated forum.
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