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Help Raise Awareness for Patients with Cystinosis- Order Your iPledge Hand!

February 24, 2015

February 28, 2015 is the 8th annual Rare Disease Day, an international advocacy day that aims to raise awareness of rare diseases and their impact on patients and their families.

To help raise awareness of cystinosis as a rare disease, Raptor Pharmaceuticals Inc. and KnowCystinosis are giving away 2015 Rare Disease Day iPledge Hands.

Use your new iPledge Hand to spread the pledge. Take a picture of yourself, a friend, or a family member with your inflatable hand and share it on the knowcystinosis.com iPledge Web site.

Help raise awareness for rare diseases like cystinosis

Order your FREE 2015 Rare Disease Day iPledge Hand now!

Here’s how it works

1. Order your 2015 Rare Disease Day iPledge Hand here

2. Take a photo–When your iPledge Hand arrives, take a photo of yourself, a friend, or a family member holding the hand. And smiling, of course.

3. Upload your photo to the gallery.

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