Organization: Association for the Bladder Exstrophy Community
Submitted by: Thomas Exler
A-BE-C and Seattle Children’s are pleased to be hosting a free one-day summer event especially for exstorphy patients, their families and providers.
Saturday, August 1, 2015
7 am to 5 pm
Join us for a series of morning sessions and learn from some of the world’s leading experts about living with and treating exstrophy. Then, head to the park for an afternoon picnic and surprise entertainment.
No fee to attend, and registration is required.
Registration: https://melissajoy.wufoo.com/forms/x19dun4j0lcspsj/
This free family-friendly event will include:
- Educational sessions on topics important to exstrophy parents, featuring bladder exstrophy specialists and parents
- Breakout sessions for children, teens, and adults with bladder exstrophy
- Fun, creative, and supervised arts and crafts for the kids
- Family picnic in the part with live entertainment!
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