Love is in the RARE – Tips for Love from the Rare Disease Community
February 2, 2024
Valentine’s Day celebrates romantic love, but how does rare disease throw a curve into typical loving relationships? Is it too hard or impossible to have a date night with your partner because of the medical care demands? How is looking for a partner different with a chronic illness? Do you need to speak a different love language to special needs children?
Global Genes has compiled some resources that might be helpful.
Looking for Love (Love on the Spectrum)
By Danny Levine
The 5 Love Languages for Special Needs Families on A Special Hope podcast
Challenging Taboos in Sex and Sexuality for Rare and Disabled Patients
Session from the 2021 Global Genes Patient Advocacy Summit
Sex + Disability Parenting | Ways It Takes a Hit + Ways to Reclaim It w/ Amanda Griffith-Atkins On The Rare Life podcast
Sex, Hugs, and the Chronic Toll by Kimberly Warner
Sick But Social: Love Is Blind and Fabulous By Stacey Philpot
Pain Points episode on Why we can’t have Date Nights.
Diaries of a First Time Caregiver: Learning About Self-Love
By Sammy Witness
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