Pulmonary Hypertension Association Marks World PH Day on May 5 with a Worldwide Lifesaving Social Media Blitz
May 5, 2015
On May 5, people living with pulmonary hypertension (PH) and their loved ones will ask their social media friends around the world to join their fight against a life-threatening disease too often dismissed as asthma.
May 5 is World Pulmonary Hypertension Day and the Pulmonary Hypertension Association (PHA), a leader in the global PH community, will take part in a global effort to educate people about PH, or high blood pressure of the lungs. PH is an increase in blood pressure in the arteries of the lungs that can lead to right heart failure. However, with symptoms that include shortness of breath, chest pain and fainting, the disease can appear at first glance to be asthma or other less threatening illnesses. Without treatment, patients survive on average less than three years from diagnosis.
PHA has designed a World PH Day celebration social media pin with the message, “PH: A disease of many stripes,” to symbolize the diagnostic challenges and how PH comes in different forms, sometimes without a known cause and in other cases, associated with other diseases. PHA members will share the pin with their followers to lead them to PHAssociation.org to learn more about PH, find healthcare resources and/or make an online donation.
May 5 will also mark the beginning of PHA’s Days of Unity. Days of Unity are events and fundraisers hosted by individuals and organizations to raise money to fight PH. The events range from small walks hosted by PH patients to an endurance bike race fundraising effort led by Team PHenomenal Hope, which raised nearly $117,000 for PHA as participants in the endurance bike event Race Across America in 2014. The association’s 2015 Days of Unity events conclude on June 20 after Team PHenomenal Hope completes its 860-mile Race Across the West from Oceanside, Calif., to Durango, Colo.
“We rely on donor support to fund programs that make a significant impact on the course of this disease,” said PHA President and CEO Rino Aldrighetti. “World PH Day is an opportunity for us to engage our community of patients, caregivers, medical professionals and donors to help save lives as we race towards a cure for pulmonary hypertension.”
To support PHA’s World PH Day social media effort, please post this social media pin with the following messages on your website, Facebook, Instagram and other social media pages.
Pulmonary hypertension may look like asthma. But on average, the survival rate for those untreated is 2.8 years. For World PH Day, share this message and World PH Day pin with 5 people you love. https://owl.li/LVTdB
World PH Day: the other May 5 celebration. https://owl.li/LVTdB @PHAssociation #PHAWorldPHDay #ILovePHA #PHAssociation
About the Pulmonary Hypertension Association
Headquartered in Silver Spring, Md., with a growing list of chapters across the country, the Pulmonary Hypertension Association (PHA) is the country’s leading pulmonary hypertension organization. Its mission is to find ways to prevent and cure pulmonary hypertension and provide hope for the community through support, education, research, advocacy and awareness. PHA does this by connecting and working together with the entire PH community of patients, families and medical professionals. PHA relies on donations to fund its many programs, including early diagnosis efforts, more than 245 support groups around the country and continuing education for medical professionals. For more information go to PHAssociation.org.
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