Rare is Not an Excuse: Curing NGLY1 Deficiency

December 4, 2014

Just because a disease affects so few people doesn’t mean that it’s not worth fighting for. All diseases are important. All lives are worth saving. Lack of numbers can no longer be an excuse in science or medicine. Featuring Chelsea Clinton, Cindy Crawford, Colin Kaepernick, Gabby Reece, Laird Hamilton, Marc Benioff, Molly Shannon, Bill Gahl, John Crowley, and Barbara Bush. Produced and directed by Academy Award-nominated Director Jason Cohen. What’s does rare mean to you? Complete “Rare (fill in the blank)” and post your own video on Facebook (

Video by the Grace Wilsey Foundation.

Stay Connected

Sign up for updates straight to your inbox.