When: Wednesday, April 19th: 2:30 pm to 3:30 pm EST
Where: 440 First Street Northwest, Lobby-level Conference Room , Washington, DC 20001
Agenda:
- Capitol Hill Update: Max Bronstein, Chief Advocacy and Science Policy Officer, EveryLife Foundation for Rare Diseases
- Newborn Screening in Florida: Vignesh Ganapathy, Associate Director of Advocacy and Government Relations, EveryLife Foundation for Rare Diseases
Agenda is OPEN. Please submit possible agenda items to [email protected]
Stay Connected
Sign up for updates straight to your inbox.