Run 4 Hope: Local and Virtual Run for CDKL5 Disorder
August 17, 2013
Date of Event: September 7th, 2013
“My name is Penny Howard, founder of Hope4Harper an organization in honor of our daughter, Harper who has daily seizures do to a rare, non hereditary, in some cases life threatening, genetic disorder known as CDKL5 Disorder.
We are currently working to fund a seizure research project we started in 2012 with Dr Francis Jensen, former President of the American Epilepsy Society and current Chair of Neurology at the University of Pennsylvania.
Our big event, RUN 4 HOPE, is coming up on September 7th. We have both local and virtual runners worldwide. Last year we had 11 States represented plus Canada. Our goal is at least one runner per state. https://www.hope4harper.com/cdkl5-run-4-hope/
Your consideration in supporting my daughter and her cause is appreciated.
Penny Howard and Run 4 Hope Team”
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