Sturge Weber Awareness Day
September 21, 2013
Date of the Event: 11/01/2013
Organization: Sturge Weber UK
Submitted by: Lynn Buchanan
We are holding the first of what will become an annual awareness day to raise awareness of Sturge Weber syndrome. We have invited other Sturge Weber groups to join us and to post their own information and have had a good response. We are asking people to visit our Facebook page to LIKE and SHARE it and to ask their friends to do the same.
We need to raise awareness of this rare neurological condition to make sure that no child goes undiagnosed. Sturge Weber syndrome – “It’s not just a birthmark”
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