Global Genes
  • Support
    • RARE Concierge – Patient Services

      Free, personalized service for patients, caregivers, and healthcare providers

    • Global Genes RARE Disease Community
    • Grant Opportunities

      Grant opportunities for the rare disease community

    • Share Your Story

      Share your story as a patient, advocate, caregiver or supporter to be featured in our community stories

  • Education
    • Learn

      Learn, search, and explore the media and resource hub

    • Resource Hub

      Search RARE Daily, podcasts, videos, blogs, stories, toolkits, and reports

    • RARE List

      Search for a particular rare disease, and resources connected to the condition

    • RARE Disease Facts

      These RARE facts show the impact of rare disease

    • RARE Compassion Program

      An opportunity for RARE patients and medical students to connect and learn

    • Know Your Family History

      Learning family health history can help find out if a disease runs in a family

    • Data DIY

      Your involvement in driving understanding, discovery, and treatments for rare disease

    • RARE Daily

      Browse the latest news, articles, and blog posts from Global Genes.

  • Research
    • Open Science Data Challenge

      A collaborative and competitive environment to use patient-provided data to solve unknowns

    • Clinical Trials Hub

      Learn and participate in upcoming clinical trials

  • RARE-X
  • Events

    Browse upcoming Global Genes hosted events and register

    • Week in RARE

      Bringing together RARE Advocacy Summit and RARE Health Equity Forum into one week

    • RARE Health Equity Forum

      Gathers rare disease stakeholders to identify ways in which we can better serve marginalized populations

    • RARE Advocacy Summit

      An unparalleled opportunity to network the rare disease community for future collaboration

    • RARE Drug Development Symposium

      Equipping advocates with knowledge, skills, and connections to advance therapy development

    • RARE Entrepreneur Bootcamp

      Designed for patients and advocates who have started funding rare disease research

    • World Rare Disease Day

      An annual observance to raise awareness for 400 million people affected by rare disease globally

    • Community Events

      Explore events hosted by communities, individuals, and other organizations outside of Global Genes

  • About Us
    • Health Equity

      Learn about our commitment to health equity

    • Team and Boards

      Get a glimpse of the people behind Global Genes

    • Global Advocacy Alliance

      a members only, global community of non-profit organizations and support group

    • Corporate & Research Alliance

      a partnership committed to improving the lives of people with rare diseases

    • Sponsorship Opportunities

      Learn how organizations can support Global Genes financially

    • Careers

      Join the Global Genes team

    • Press

      Global Genes’ latest press releases

    • Contact Us
Donate
Global Genes
  • Support
    • RARE Concierge – Patient Services
    • Join our community
    • Grant Opportunities
    • Share Your Story
  • Education
    • Learn
    • Resource Hub
    • RARE List
    • RARE Disease Facts
    • RARE Compassion Program
    • Know Your Family History
  • Research
    • Open Science Data Challenge
    • Clinical Trials Hub
  • RARE-X
  • Events
    • Week in RARE
    • RARE Health Equity Forum
    • RARE Advocacy Summit
    • RARE Drug Development Symposium
    • RARE Entrepreneur Bootcamp
    • World Rare Disease Day
    • Community Events
  • About Global Genes
    • Health Equity
    • Team and Boards
    • Global Advocacy Alliance
    • Corporate & Research Alliance
    • Sponsorship Opportunities
    • Careers
    • Press
    • Contact Us
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  • Privacy Policy
  • Global Genes Terms Of Use
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28 Argonaut, Suite 150
Aliso Viejo, CA 92656
Phone: (+1) 949-248-RARE (7273)

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