Today I Wear My Ribbon For: Ellen Barnes

July 27, 2013

Our hearts, thoughts, and hope for a quick recovery go out to Ellen Barnes. Ellen is an amazing patient advocate with intracranial hypertension.

Ellen, commonly known as “Effervescent Ellen” for her bubbly personality was diagnosed a couple of years ago with a pseudotumor cerebri (now called Intercranial Hypertension) when she was 16. Only 1 in 100,000 people are diagnosed with this. IH is where your body produces too much spinal fluid and it “crushes” the brain instead of “cushioning” it, like it’s supposed to. It causes a lot of neurological problems including—most obviously a 24/7 headache.

Over the last few weeks she has experienced complications from a shunt placement and is currently battling bacterial meningitis in the ICU.

Please wear your ribbon for Ellen this weekend and send your hope, love, thoughts and prayers to her and her family. You can comment below to leave a message of hope for Ellen.


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