We’re All In This Together

Dear Rare Disease Community,

It is as important as ever to champion the needs of rare diseases. Every day, we each do what we can and our efforts are made even stronger when we work together. In that spirt, Global Genes has joined with EveryLife Foundation for Rare Diseases, Haystack Project, and National Health Council to advocate for our rare disease community. The letter below has been sent to the Department of Health and Human Services (HHS) Centers for Medicare and Medicaid Services (CMS) as part of an urgent effort led by our policy partners. We are proud to join with them to address access to home infusions during COVID-19. 

This is just one of many efforts we have partnered on with other organizations in the rare disease community. We will continue to work together with everyone to make sure your voices are always part of important policy conversations.

Always in Hope,

Kimberly Haugstad

CEO, Global Genes